Looking at Zoe today it’s easy to forget what she’s been through. She’s a happy, healthy, funny little girl. These are her milestones in the NICU and during her first years.
December 26, 2008
Zoe is born at 24 weeks of the pregnancy, weighing a pound an a half. Her twin brother Jean-Marc Junior lived only hours.
January 1, 2009
Zoe needs blood for a transfusion. Jean-Marc and my mom donate blood for her.
January 5, 2009
Zoe is off the photo therapy that she was receiving for jaundice.
January 6, 2009
Zoe undergoes PDA ligation surgery to close a valve in an artery. She gets a PICC line to replace the IVs.
January 11, 2009
Zoe is off the conventional ventilator and on C-PAP for a couple of hours.
January 12, 2009
Zoe is back to the oscillator and diagnosed with severe pulmonary emphysema. We’re told that the following days are critical and that she might not make it. They order a special ventilator called the jet.
January 15, 2009
Zoe needs more donors for a blood transfusion and the “Zoe Movement” kicks off.
January 22, 2009
Zoe goes back to the oscillator after a very rough night. Months later, the doctor told us he was about to call us to say our good byes, but she unexpectedly turned around and stabilized.
January 23, 2009
Zoe becomes very swollen as a side effect of the medicine she received to keep her paralyzed to that the jet could work.
January 28, 2009
Zoe’s PICC line comes out and since she is too swollen to put in a new one, she receives a central line or Broviac.
January 29, 2009
Zoe receives her first feeding through a feeding tube: 2 cc of milk.
January 30, 2009
Zoe is moved to the conventional ventilator!
February 2, 2009
A purple stain appears on Zoe’s belly and a drainage is put in place. She had perforated her intestine and there was stool in her belly.
February 8, 2009
We receive a call at 4 am. Zoe needs surgery for the perforation in her intestine.
February 13, 2009
Zoe receives her first eye exam to test for ROP (Retinopathy of Prematurity). Everything looks good!
February 18, 2009
I cradle Zoe in my arms for 5 minutes. It was the first time I held her.
February 19, 2009
Zoe and I do kangaroo care for the first time, for a couple of minutes.
March 2, 2009
I kangaroo care for more than an hour. What a blessing!
March 6, 2009
Zoe is diagnosed with ROP grade 3 plus and undergoes laser eye surgery.
March 13, 2009
Zoe goes on C-PAP!
March 15, 2009
Zoe goes on high flow nasal cannula! I rush to the hospital at midnight to see her.
March 17, 2009
Zoe has a convulsion and undergoes an EEG test, which comes out normal. The convulsion was a reaction to the withdrawal of the sedative she had been receiving for months, and that was stopped when she started breathing on her own.
March 21, 2009
Zoe wears preemie clothes for the first time! They look huge on her.
March 27, 2009
Follow up eye exam. All is good.
March 30, 2009
Zoe takes a bottle for the first time.
March 31, 2009
Zoe is off the nasal cannula, breathing on her own.
April 3, 2009
Zoe undergoes the second intestine surgery (re-ileostomy). She is intubated for the surgery.
April 7, 2009
Zoe goes back to CPAP, nasal cannula and room air.
April 8, 2009
Zoe resumes feedings through a feeding tube.
April 9, 2009
Zoe is moved from an incubator to an open crib.
April 14, 2009
Zoe resumes feeding with a bottle.
April 20, 2009
Zoe is transferred to Unit C, last step before going home.
April 25, 2009
I walk for Zoe at the March of Dimes walk.
May 5, 2009
After 130 days in the NICU, Zoe goes home!
Zoe receives a pink and purple helmet for 3 months to correct her flat head.
Zoe starts physical therapy.
Zoe stops eating solids and starts losing weight.
Zoe is diagnosed with “failure to thrive.” We consider a G-tube.
Zoe stops losing weight. We start feeding therapy.
Zoe sits by herself.
Zoe spends a week in the hospital due to rotavirus, an intestine infection.
Zoe starts occupational and speech therapies, in addition to physical and feeding.
Zoe receives an AFO (brace) for her left foot and starts walking by herself.
Zoe receives pink glasses (50% of children use glasses them after laser eye surgery)
Zoe receives a pink cast on her left leg for 2 weeks, to correct the posture of the foot.
Zoe starts pre-school in a federally funded ESE program for children with developmental delays. She receives PT and OT at school. She takes the school bus all by herself. She no longer requires speech and feeding therapies. She talks a lot!
Zoe is one of the Family Ambassadors for our hospital’s March of Dimes team. We raise funds and walk for preemies.
Zoe is referred to a federally funded integrated pre-school program, where only one third of the students have mild developmental delays.